coeliac

[Dragonfly]

Hi, as I am a coeliac i wondered if you or any of your mindees has got the condition. I have never come across a child with it and I have not met many adults with it although allergies are getting more common. I have had it 19 years and still find it a pain the b--:(

[aly]

Hiya

Both my mother in law and her brother have it.

My son was in hospital on the weekend due to blood in his sick, and MIL asked a few questions about him and the same sort of thing she went through so whilst they had blood from him they have done extra tests to see if he has it etc..he is only 5 and should hear within the next week.

They said it is not common for other family members to have it and here we are brother and sister have it.....let hope her grandson doesn;t have it but if he does he is young enough [5] to deal with it.

Sorry not the kind of responce you may have looked for but thought I'd mention it whilst it is still fresh.

[Dragonfly]

No none of my family or children have it, I have 3 children two of which are grown up. I got it in my late twenties!
Hope your little boy doesnt have coeliacs, wasnt a blood test around when i was ill was straight to bowel biopsy,which you have now if blood test comes back positive?

[nannysue]

One of my minded children was diagnoised with it last year , she was 12 at the time, she is managing quite well, but she was a verrrrry fussy eater before so now its even harder.

[solly]

I have a mindee who has it and she was diagnosed with it just before she was 3 years old, she is brilliant with it and will happily tell you what she can and cant have I suppose as she was so young it was easier to change her diet. She is now 5:)

[aly]

One of my minded children was diagnoised with it last year , she was 12 at the time, she is managing quite well, but she was a verrrrry fussy eater before so now its even harder.
my son is VERY fussy so this is another reason why i hope he hasnt got it, wecant get him to eat the food he has now.!!

[christine e]

I look after a 4 year old who is being treated as if she has it as she has all the symptoms but hasn't had the test yet (understand that this involves a biopsy). She is very good and will ask if she can have something if someone else offers her a biscuit etc. Her mum sends most of her meals but I do have bread, jaffa cakes and flour for her. I have to say that she eats a very healthy diet as she eats very little processed food.

Cx

[mama2three]

my eldest had bowel problems , the gp had us following a gluten free diet for a year with little improvement before sending him to a specialist - only to find he hadnt got coeliac disease after all - just by glancing at him he said no way is this coeliac , he has very defined muscles!! ( and often coeliac children look undernourished).
trying to follow the diet with a reluctant 11 year old was a nightmare and school were no help! At the time noone told us certain things were available on prescription.
In the end he had a different diagnosis and is on long term medication.

[nannymcflea]

My MIL has it, my dd1 had a biopsy at 9 months of age as she had all the symptoms but this was negative, though she spent the next 9 years on a gluten free diet, with trials every 1-2 years (depending on docs!) and eventually was put on wheat at 9 years and was fine.:)

[Dragonfly]

Did you know being on a gluten free diet before a biopsy can give a negative result? If you do not have it badly your immune system and bowel lining Villi starts to mend whilst on the diet ( its a auto immune problem).Usually a child with coeliacs before testing etc fails to put on weight diahorea sickness cramps anemia etc are all common symptons you might see.

[LittleAcorns]

Did you know being on a gluten free diet before a biopsy can give a negative result? If you do not have it badly your immune system and bowel lining Villi starts to mend whilst on the diet ( its a auto immune problem).Usually a child with coeliacs before testing etc fails to put on weight diahorea sickness cramps anemia etc are all common symptons you might see.

Hiya I've just done a forum search on Coeliacs as my daughter is under investigation for it

I also heard that you can get a negative result if you follow a gluten free diet pre tests, Im not looking forward to it if she has to start eating gluten again, as I also heard that the have to go on it for a while (one month or 6 weeks, I think) then do the biopsy

If Im right I think the symptoms of CD disappear in a few days once you stop eating gluten but it can take 6 months + for the damage to completely reverse